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4th UAE Rare Disease Society Congress 2026

PRE-CONGRESS WORKSHOPS

September 18, 2026 - Friday
Le Meridien Dubai Hotel

WORKSHOP 1
14:00-15:00

Diet as Management of Rare Diseases

Ms. Masooma Al Jasmi

Head of Clinical Nutrition Al Jalila Children's Specialty Hospital, Dubai, UAE

Learning Objectives

By the end of this workshop, participants will be able to:

  1. Explain the role of nutrition in the prevention and management of selected rare and inherited metabolic diseases.
  2. Identify disease-specific dietary interventions and their clinical indications.
  3. Develop individualized nutritional management plans in collaboration with multidisciplinary healthcare teams.
  4. Recognize common nutritional challenges across different stages of life and strategies to optimize long-term health outcomes.
  5. Educate patients and families on dietary adherence, monitoring, and available nutritional support resources.
WORKSHOP 5
16:15-17:15

Bleeding Disorders

Dr. Eman Alshamsi

MBBS, RCPCH Consultant & Acting Head of Pediatric Hematology Oncology Al Jalila Children’s Specialty Hospital, Dubai, UAE

Learning Objectives

By the end of this workshop, participants will be able to:

  1. Recognize the clinical presentation and diagnostic approach for inherited bleeding disorders.
  2. Apply current evidence-based management strategies for hemophilia and other rare bleeding disorders.
  3. Identify and manage bleeding emergencies using appropriate treatment protocols.
  4. Promote multidisciplinary care that supports long-term health, rehabilitation, and quality of life.
  5. Empower patients and caregivers through education on bleeding prevention, treatment adherence, and self-management.