Dear Esteemed Colleagues,

On behalf of the Scientific and Organizing Committees, as well as the UAE Rare Disease Society, it is my great pleasure to welcome you to the 4th UAE Rare Disease Society Congress 2026. As President of this year’s congress, I am deeply honored to host this gathering of distinguished experts, researchers, advocates, and individuals committed to improving the lives of those affected by rare diseases.

This congress provides a vital platform for sharing groundbreaking research, fostering collaboration, and advancing progress in the diagnosis, treatment, and support of patients with rare diseases. Our collective efforts are essential in addressing the unique challenges faced by this community, and I am confident that the knowledge, partnerships, and insights gained here will leave a lasting impact.

Rare diseases, though individually uncommon, collectively affect millions worldwide, presenting unique challenges and opportunities in the medical field. Studying these conditions often unveils fundamental biological mechanisms, offering insights into more prevalent diseases. Research in rare diseases drives innovation in diagnostics, therapeutics, and personalized medicine, pushing the boundaries of medical knowledge and improving patient care across various specialties. This focus not only benefits those with rare conditions but also enriches the broader medical landscape.

Although rare diseases are individually uncommon, together they affect millions worldwide, presenting both complex challenges and remarkable opportunities. Research into these conditions often reveals fundamental biological mechanisms, offering insights into more prevalent diseases and driving innovation in diagnostics, therapeutics, and personalized medicine. This focuses not only benefits individuals living with rare diseases but also enriches the broader medical field, pushing the boundaries of science and patient care.

I warmly encourage each of you to participate actively, engage in meaningful discussions, and share your expertise. By working together, we can amplify the voices of those living with rare conditions and move closer to a brighter, more equitable future for all.

Sincerely,

Dr. Nuha Alzaabi
Congress President
Metabolic Genetic Consultant
UAE Rare Disease Society